Tuesday 29 May 2012

Choices

Last week, 2 people I know were taken from this earth far to quickly, way before their time.  One was a well love high school teacher who made everyone feel equal and truly cared about.  She was killed in a car accident leaving 3 children and a husband.  Another was my cousin's husband.  He died of a massive heart attack, with no known heart disease in the family.  He left 2 sons and a wife behind.  These families had their lives completely shaken last week, leaving all of us the never ending questions of "why?" Life certainly has a way of dealing us things far different from what we want or request.  I know that God will give you as much strength as you need to walk through these dark seasons.  BUT you have to allow Him to, you have to ask Him in.   Jesus answered "I am the way and the truth and the life.  No one comes to the Father except through me."  John 14:6   Life passes by so quickly.  People, ask Him in, cling to Him in the bad.  Praise Him always.  Live and Love fearlessly.  You can die fearlessly as well.

3 little people who give me great joy,


 ALSO:
Our next food rotation is coming up, we are keeping all 5 veggies!!  Next up are:
Egg yolk, Banana, Coconut Oil.    Not exactly when we'll start, sooner than later.  I'm still working on giving up my fear!

 

Friday 18 May 2012

Slowly but surely

We are still trucking along in veggie land.  We still have all 5 veggies, and he is eating almost half an ice cube of puree each!  And while we have lost some sleep (waking every 45 mins or so for 4 days in row) the last 2 nights, we have fell back into our routine of every 2 hours, which I'm very thankful for.  I'm praying this continues,  his cough seems to be clearing up, he is still rattly in his chest, but it is loose and he can cough on command so we are coughing up the last of it I hope, or at least until we start something new! 

Anything good is worth fighting for, and God is beyond good.  I know that God has amazing things in-store for Levi so we will continue to fight! 

"I tell you, you can pray for anything, and if you believe that you've received it, it will be yours."
Mark 11:24


We are believing in full healing, and until we get there God's grace is enough!!

A smorgasbord of nettel tea, beef soup, and kraut

Loving his tea

Monday 7 May 2012

REcalculating and a LIST

We've been out and about a lot lately.

We went and celebrated the life of my grandma last week.  If a funeral can be beautiful, this was the one.  My grandmother left a legacy of love and kindness.  Over and over we were told of how she touched peoples lives in love.   She lived 95 years and it was not an easy life by any means at all.   A diary of hers was found.  She ended many entries with a line from a hymn, or a bible verse, or something she was thankful for.  She choose to be thankful in everything, and love everyone, no matter the circumstance.   She was a wonderful woman, one I'm very proud to say was my Grandmother.  I want to be just like her when I grow up, and hopefully walking this journey of FPIES has got me started. 

And so back to FPIES we go.   We did nine days of pumpkin, and it was deemed a past.  We did however see some stuff.  Stuff that will surely make me seem or go crazy.   The stuff we saw, was a red cheek that looked like he was running a fever about 2 hours after he ate it.....  I would have taken it, if that was all we saw,  but around Day 6 he started waking up every 40 mins.  ALL NIGHT LONG.  sigh.  This happened 3 nights in a row, then I,  in my semi conscious brain,  decided (mostly because I forgot to thaw some out) to give pumpkin a day off.  Well if I  didn't get a 3 hour stretch of zzzzz's that night.  Dang Pumpkin..... couldn't just be an easy pass.   And so we quit pumpkin for a few days while I  tried to figure out our next move.  I didn't want to pull it completely, but I also didn't want to keep giving it to him IF these were the beginning signs that maybe his little body couldn't really tolerate it so many days in a row.   I don't blame his little gut,  I mean I get it.  WHO really wants to eat pumpkin every single day in a row (or any)?   But I keep telling Levi.  Beggars can not be choosers, and we be the beggars. Thus the recalculating began.   I went back to our rotation days.  NOW you may call me crazy.  5 veggies.  Yes peeps, you read that right.  5.   Here goes the list.  Pumpkin, celery, cauliflower, zucchini, and carrots.  We have done one bite of each of those in a row.  Then he got a runny nose and really mucous y cough, BUT so did Silas.  Sometimes I think God kinda lets someone else get cold symptoms before Levi does.  Cause you see.  I become a doubter when Levi gets sick.  He perfectly healthy before we give him food and most often (well kinda like ALWAYS) by Day 5 he is either sick or showing signs of becoming sick.   So I get scared and panicky and quit, falling back on MY safe, nursing.  But lets get real, I can't nurse the dude till he's 5 (or longer) eek.   Not gonna lie, even as unpleasant as that sounds, I am tempted to DO just that.  But that isn't what God has planned for us, so I will keep on, keeping on, and most often when we do that, we get over that hurdle, unnerving as it is, and find something great on the other side, like a list.  A list of things Levi can eat.  Even if it is one bite a day.  Cause that one bite builds to 2 then 3 and before you know it becomes  3 whole ice cube sized portions a day..... like we have with beef.  So today I would like to share our list of things that Levi is eating.

All of the below is given everyday with no concerns:

Broth: Beef, Pork, Fish, Buffalo, Deer

Grass Fed Beef meat (up to 3 ice cubes of puree in a day)

Sauerkraut, mostly the juice, but some tiny pieces of kraut as well.  (you may think this is bizarre, and that I may be a slightly silly mom giving him kraut juice,  but I would like you to know that Levi is obsessed with it.  It is by far his FAVORITE thing, and he begs for it.)

Tea:  Nettel with a touch of honey
         Yellow Dock

One full capsule of a pro biotic

Homeopathic remedies that are helping with heavy metal detox, and iron absorption


 Here is what we are just in the beginning stages of, but have seen no major reactions:

Peppermint tea with a touch of honey


Veggies: Pumpkin, celery, cauliflower, zucchini, carrot

Isn't this AWESOME?!?!  In January we had NOTHING!  Whoop!  God is forever faithful!!



I do ask for a prayer request though,
Levi is having a very hard time (he can't) swallow anything that is not in liquid form.  Could you please pray that this may be a concern that we can cross off our list soon!